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If you are still reading this blog, after all the rants, raves, and frankness, then you likely don't hate me or find me totally annoying. There is the odd chance that you do hate me and read because of a delight you take in my struggles, which would likely make you diagnosable in some taxonomy or another of the DSM. I'm kind of banking on the fact that most of my readers are rooting for us and not looking forward to our demise.
I often wonder how many people in my life are trying to help versus who are just doing the base minimum in order to state that they are helping. I am pretty tough on my family. Yup, I know. If you haven't figure out this by now about me, my expectations are, well, a little on the demanding side. I become downright argumentative/judgmental when my requests/demands are not met to my liking. And that happens a lot.
I try to keep in mind that they likely don't mean to hurt me. But I guess that when I tell them they are doing as much, and they refuse to accept any responsibility in their actions of making me feel that way, well, I become disgruntled. But there are several occurrences where they brought me joy - and I am not sure if I ever relayed that.
Now as much as I complain about my kinfolk, I do love them. And they aren't all out evil. In fact, sometimes they can be quite charming and even amaze me with their kindness. Recently, Zach's godparents began watching Sophia and Zach on Saturday mornings so that Steve and I could participate in training runs.
Steve and I will be running in the 33rd Annual Syracuse Mountain Goat 10 mile Run on May 1st. We have been training for the run and are running it in dedication to those affected by autism. We are asking those who want to support us to make a donation to Families for Effective Autism Treatment a local non-profit group that provides resources and support for many families affected by autism. Please consider donating to this terrific organization - they accept credit card donations - and let them know it is for the Mountain Goat run.
Anyh0w - the training runs have been on Saturday mornings at 8 am downtown in Syracuse. That meant having a sitter at our house at 7:30 am in the morning on their day off from work. And Cathy and Mark, without my asking, volunteered their time to us. It has meant the world to me and has made a difference in my disposition, because this is exactly the type of support we need. 1) I was able to get time with my husband doing an activity we both enjoy. 2) I was doing something healthy for myself. 3) I was getting out of the house that I feel so chained to otherwise, and 4) I was getting a break from the kids!!!
Aunt Cathy and Uncle Mark also had us over for dinner during Passover. It was so pleasant.
As for the rest of life: Zach's base paraprofessional (therapist) has left and we are once again scrambling. I have found partial replacements but there always seems to be issues of one sort or another. I have yet to receive the old data from a previous teacher which may create a problem if we don't get it soon because in order to qualify Zach for summer services, we need to show regression of skills from periods when Zach did not receive therapy (vacations, breaks, etc.) . If we don't have the data that may pose a problem. We attempted neurofeedback with Zach last week. The session was a struggle, and I noticed absoultely no changes in Zach, so we may revisit, but for now, I think we will be passing. Zach starts play therapy this week a to the tune of $60 a shot. Yikes! He would have been working with this therapist for free had I not been dimwitted enough to pull him from his preschool program. *sigh*
Sophie's test results are in from school. She is fantastically average according to the tests. According to observers in her classroom, she has some issues. So what does it mean if you test well, but in the academic environment, you have struggles? We'll find out - Sophie's meeting with the school district special education department (CSE) is May 10th. The fun just never seems to end!
So please do consider making a donation to the great organization I cited above - any amount is appreciated! They have done a lot for our family and others. How many times can you give money to a charity and absolutely know it is being used wisely? I can assure you, this is one of those times.