And it goes on.....

This kids are OK.  However, Zach's cough has changed and increased.  He is coughing a bit more than before - although no fever.  It is no longer that weird barking cough, but instead a "have something dripping down the back of my throat" cough.  His eyes have a slight dark discoloration under them which leads me to believe this is something sinus/nasal.  He is not eating well and in fact has thrown up a few times a day or two ago after gagging on what I believe is stuff running down his throat.  Poor little guy.  He wavers between happy/compliant/engaging to cranky/wining/wanting to be held.  I am so glad that when he is not feeling well, he does not push me away.  However, with this blessing, there is also the curse of not being able to attend to other tasks - including cooking and cleaning let alone any me time.  Steve has been out of town until today so things have fallen apart a bit.

In the 6 days that have passed where Zach was not in school, I let him just lie around if he appeared really tired.  But when he was more affable, I took advantage of the opportunity to work with him on the programs in his curriculum plus a few things we do at home.  Right now, his overall curriculum is pretty basic.  The director at his preschool has slimmed down the initial programs she developed for him, after observing that he didn't seem to respond as anticipated based on the profile the EI team passed on to them.

We noticed that some skills had regressed of his, and that he was saying less since in the school program.  This is when we asked the school district to provide some additional hours in his home environment.  We felt that the intensity and individualization has been substantially toned down since entering the preschool only program and that by adding in some 1:1 time at home, he would have all his requirements met.  He has benefited from school program, we have seen an increase in his social interactions and transitions (response to change).  He has shown his teachers a lot of affection which I know means he likes it.    A November 16th meeting will help to seal the fate of if the school district/county will provide this for us.  The way it works is at this meeting, the school district will decide if he needs it and the county will be there to represent their interests which is basically financial - they are the one who foots the bill.  As of Friday last week, we now have legal representation to help us through the process.  I am hoping that this guidance will make all the difference.

I am typing this as I stay up listening to my sweetie cough in his sleep.  Will my sleep overcome my worry and allow me a few hours tonight?