CPSE Meeting

Steve and I were pretty nervous. We have been fibbed to and surprised so many times by those who are at the helm of providing services to us, that we just pretty much expect anything goes during these meetings.

Today's CPSE was uneventful. Basically we are status quo until January. Then they will "evaluate" home based stuff. I interpret this as them basically saying that they will likely fight us on continuing our ABA therapist at home which just happens to correlate with the New York state insurance reform S7000 initiation date. Coincidence?

S7000 is a new bill that has been signed off on by both houses in the state legislature. Before I read the bill, I felt there was a problem. I didn't have to know the content. It was published and put to a vote within 3 weeks after publication. It has many, many sponsors from within the senate. It is backed by only one group - Autism Speaks and denounced by many other autism groups . This just sounds like politics at its best to me. As for the content - some things were pretty glaring there too. Most notably, it has taken out all caps and it has managed to require the involvement of four different government agencies approval in order to get treatments covered.

I have no idea if it will be ineffectual or not. I pray that the naysayers are wrong, but my gut is telling me "uh-oh, I think we just got shafted again." I haven't been following any of this too closely. Frankly, I cannot take it right now. Something has told me to lay low right now. And so I am.

We got through another day. Zach is still my boy and still smiles. I have begun to pray a lot again.

After a mental reset, I will take a deep breath and get ready for January. Now if I could just find my law books! I lent them out and have no idea to who. Maybe I will add them to my amazon.com wish list and see if I have any Fairy Godmother's out there.