Zach had his third evaluation today (of the we've got a kid on the spectrum type of evals that is). It technically is his 5th since July. 2.5 hours of pure fun, me in one room with Zach and two women (an SLP and a psychologist) and Steve hidden behind the glass with 4 others (a social worker, OT, PT, special ed and another psychologist). He did well, whatever that means.
He didn't tantrum a lot, and he stuck with all the the tests like a little trooper, although he wasn't able to understand many tasks presented to him because he basically has little receptive language. The psychologist told us that the cognitive testing showed that Zach has skills like his peers when it comes to visual testing, however, because of his lack of imitation and verbal communication, he shows a delay cognitively in those areas. Kinda knew that. Look forward to the report they will come up with. I must say that the team of people there seemed really great and that I would love it if Zach got to work with them. But they are not likely the people that he would end up working with. I asked the question that is perplexing me the most at this time: how do I know what kind of program is best for Zach - a school program or a home based program? Unfortunately, they explained that they are not likely to give us that sort of input, that it will rest on what we decide with the school district. Sending my 2 year old on a bus cross town to be gone all day is not making me feel too terrific - I have to decide if my feelings are motherly stuff that is gooey and wanting to nurture the little guy, or if it is some instinct that it isn't the right choice for him right now. I have decided to seek some comments from an independent party outside the people we have used so far - a professor at SU. Hopefully, she can offer me some guidance, because this scares the snot out of me, and I will likely have to make the decision with the next month. uugghh.
Sophie had the chance to go to a new "House of Bounce" that just opened up a few weeks ago. Our sitter A. said that Sophie loved it and that they had a lot of fun. She said she'll take both kids there next week - how cool is that? This is good - the PT told us today she recommends that Zach start receiving PT. Can't wait to make the request from the county for this one.
I am still feeling a lack of energy - having a hard time getting things done. Steve is back in town. Things are sort of looking up - we have a team of therapists coming to the house who seem very good, we are getting services mostly paid for, I have begun some advocacy work, work has stabilized. But I am not able to read right now, and feel like I can barely concentrate. I think I may be approaching what us runners call "the wall" usually between mile 20 or so where you feel like you cannot go on any further, but if you can push through that, you'll finish the final 6.1 no problem. I keep on using this analogy in my head to keep myself going, but I really wish it didn't feel so hard right now.
I would love to see a little more progress with him - maybe that could give me the juice I need to climb this darned wall.
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