As if college costs are not enough to worry about at present rates, add to that an annual inflation rate for college costs of 7%, and then compound that with the possibility of no college. This is another issue for those of us with special needs kids. I have always been a fiscally responsible sort of gal. How do you plan for a future so uncertain?
I am coming to realize that my job is more important than I thought. I spoke with a mother whose child is ~10 years old. She stayed with her job full time throughout the diagnosis and afterward. I asked her how that was for her - she said working did give her some sanity and a break from it all, but it also gave her sense of peace that her son would have enough financial backing for services and support he will require throughout his lifetime. Ouch. Whoa. Gosh.
I have always been a future planner. I have been living in the "here and now" out of necessity (I am merely trying to exist at some points) and appreciate what that offers you in life. Live for today, right? I always found it very hard not to worry about what the future holds prior to all this. This special needs stuff is bringing out a vast new area of concerns for me.
Who will take the kids if we die? Will they institutionalize Zach? Will Sophie and Zach be separated? How do we ensure he will be given the same consideration we have been ensuring for him knowing that many professionals have let him slip through the cracks on so many things?
I think I need a drink.
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