A week of high drama is to come.
Today, Mom went for her PET scan. PET stands for Positron Emission Tomography and measures abnormal cell activity at the molecular level that can indicate cancer. This will basically tell us if all she went through last summer/early fall was worth it. I feel so selfish for not having even said a prayer for her until last night these last few months. She is all that consumed me this past summer, and Zach has been all I think about since October.
Results will be in tomorrow morning. Please say a prayer for her or send positive vibes or whatever meditative thing you do to wish others peace/luck/health.
The other event this week is Friday - to find out what services the county will be providing for Zach. I just received an email back from the state regarding my initial letter:
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Dear Dr. and Mrs. Morphet:
Thank you for your email of January 29, 2009, to the Bureau of Early Intervention regarding ABA services for your son.
We very much appreciate your concern over the lack of available ABA services in Onondaga county and have discussed this with AXX XXXXX, the Early Intervention Program Coordinator in Onondaga. Subsequent to our conversations with her, we understand that an ABA provider has been located and should begin providing services to your son by March 2nd. We have also been informed that your ongoing service coordinator has been in contact with you to schedule an IFSP meeting for Friday, February 20th, at which time the IFSP will be amended to include the provision, frequency and duration of ABA services. You will also have an opportunity to meet the new provider.
We hope that these developments have helped to satisfactorily resolve your concerns. If you continue to experience problems with receiving ABA or any other early intervention service, you can discuss them with your ongoing service coordinator, or contact the Bureau of Early Intervention directly at 518-473-7016. As you are probably aware, parents have many rights under the Early Intervention Program, including due process rights for resolving
disagreements about early intervention services. The Early Intervention Program: A Parent's Guide will provide you with more information about due process on pages 26-32.
Thank you again for writing. Please contact the Bureau of Early Intervention if you need additional assistance.
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I feel like a bit of a heel for having written to the state about our experience - but if they had shown us a little more progress or attempts at getting us what we needed, than perhaps I wouldn't have felt compelled to write the letter in the first place. I am a patient person - although I have known some who are more than me, and some who are less. But this should not have required patience - it should have been acted on back in November or even sooner. I am still second guessing all that I do - I think that is just my nature. As I talk to other women now more than I ever have, I wonder if all women tend to do this. It appears Zach is going to get what he needs - and this is a good thing. If I ruffled a few feathers in doing so - than I will just have to live with that - and hopefully they will have the insight as to why I did what I did.
Also - interviewed a babysitter that we will give a shot at this Friday while we go to the county for our appointment. Lots of stuff going on this week for sure. And it is only going to get better - Zach has a sleep deprived EEG (electroencephalogram) next Monday. Yes that means no sleep for us all night. Just a typical day in the M of C House. (Morphet's of Camillus) Wow - life is crazy.
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